A few posts back (previous to Christmas, I think?), I mentioned that something had come up that I wasn’t quite expecting and didn’t really know how to process. I didn’t have the time to write about then, but I’m making the time now.
With such a large gap in between my first child and the triplets, it had been quite some time since I had done well-baby visits. 16 years ago, they checked length and weight, gave immunizations if needed, and nothing much else. Nowadays there is all this talk of milestones, what seems like endless questions about how much they are eating and drinking of what, etc. And while I admit it may just be an assumption on my part, it feels like there is a heavier focus on milestones with us, either because they were premature or because they are triplets, or both.
So at one of their well-baby visits (9 month, I think? How sad that I can’t even remember!!), the doctor was asking about speech, and I expressed concerns. Everything I read said they should be making more consonant sounds, maybe even saying mama, dada, and baba, and they weren’t saying much of anything. We had our developmental clinic appointment coming up, so she said to cover it with them, but to be safe, let’s have all of their hearing tested again.
At the clinic, we were told that they wouldn’t normally recommend speech therapy until they were at least 18 months because, technically, they weren’t considered speech-delayed unless they reached 18 months with no words. But because they felt I was very stressed about it, they wrote up a recommendation for Juliet to get speech therapy. Of course, by the time we got the write up and recommendation, she was noisy as all get out (if not using words yet), and we opted to skip speech therapy for now and stick to the normal routine. If there were still concerns at 18 months, we would do whatever they suggested. In the meantime, we would follow through with the hearing tests (though they had passed their newborn screening).
Pacey and Juliet both passed their hearing tests. Flynn’s was inconsistent. We scheduled a repeat test to account for him being tired, hungry, overstimulated, etc. His 2nd test was inconsistent. We had to go to the next step and have him sedated for an ABR (Auditory Brain Response, I believe). What a very long and difficult afternoon that was.
The whole process took over 4 hours, plus the 45 minute drive each way, and I took him by myself while PB stayed at home with the other two. I had to wait in the waiting room by myself for roughly an hour, and even though it wasn’t life or death, my chest felt heavy.
To begin with, simply watching your child go under during sedation is very unsettling. They told me it would be, and I kept it together, but inside…I can’t begin to explain to you how it feels. If you’ve been there, you know what I mean. Watching your baby go completely limp like that, it just makes your heart sink.
As he was waking, the audiologist was explaining to me that he had not passed the ABR. That he has bilateral sensorineural hearing loss. She began to explain that it was very mild, in a limited decibel range, only a tad below normal. That he would have trouble hearing certain consonant sounds and therefore have difficulty acquiring speech without treatment. That she recommended hearing aids. And while I heard what she said, I could only focus on Flynn waking up.
It is even more unsettling watching your child wake from sedation than to watch them go under, especially when they are so little. He was confused, and I’m sure felt funny, and being totally unable to communicate, he just cried. And he was so hungry, but so confused, that he wouldn’t take his bottle at first. And between the news she gave me and my baby having such a difficult time, I felt really emotionally overwhelmed. But I held it together. At least until I got on the road and called my mom.
For some reason, it seems silly to me that I’ve been so emotional over this. It is a problem that can be treated. It isn’t life or death. It causes him no pain. We caught it early, so he doesn’t have much catching up to do. Given the fact we had triplets and all the meds I was on while I was pregnant, we are so lucky that we aren’t facing something much worse.
But he is my child. And he has a health issue. And even though she said it’s not something we’ve done, it’s hard not to feel guilty, not to wonder if I should have done something differently.
And I worry about the stigma that may come along with the hearing aids when he starts school. He’ll already stand out, being part of a three-pack. And children can be so horribly mean.
For once, I’m truly at a loss for words. I’ve been trying to put my finger on the exact reason why my heart sinks and my eyes well up whenever I think too long on it. It just breaks my heart. And I think it just does.
He is my child. I am his mother. And though he is still perfect to me, though I love him as much as I ever did, it hurts me that he will have to live with this.
The ABR was on December 8th. His hearing aid has been ordered, and we are waiting to see an ear, nose and throat doctor before his final fitting. So, I’ve had time to process it all. Or at least, I am in the process of processing. I do know that as time passes, it won’t phase me anymore. We’ll reach a state of new normal. And I believe that if we don’t treat him like he’s different, he won’t see himself that way either, and it will make it all much easier in the long run.
But in the mean time, I think I’m grieving a little bit. Grieving what exactly, I don’t know. But I think grieving is definitely the right word for it.
Sorry if I’ve run at the mouth, and if I sound a little disjointed, it’s probably because I am a bit these days. But I have faith that things will smooth out.








